JAN WILLEM GORTER, CANADA
Jan Willem Gorter, MD, PhD, FRCP (C)
CanChild Centre for Childhood Disability Research
Department of Pediatrics, McMaster University, Hamilton, ON Canada.
Title: Turn the Tide on Transition to Promote Participation
More young people with disabilities grow up and become adults living in the community. Worldwide, there is a need for better transitional care for adolescents with disabilities and their families leaving the pediatric care system. What can be done to turn the tide on transition? This presentation will focus on an approach to promote meaningful participation outcomes in adulthood and includes innovative eHealth strategies to help young people prepare for their future.
BRYCE JOHNSON, USA
Bryce Johnson, Inclusive Lead, Product Research & Accessibility
Microsoft Corporation, Microsoft Devices, Seattle, USA
Title: The Xbox Adaptive Controller, Intentionally including gamers with limited mobility
LEE RIDLEY (« LOST VOICE GUY »), UK
Lee Ridley (« Lost Voice Guy »), Stand-up comedian
SUE FLETCHER WATSON, UK
Sue Fletcher Watson, Senior Research Fellow
Patrick Wild Centre, University of Edinburgh
Title: Merging psychological theory with a neurodiversity framework for better autism interventions.
The neurodiversity movement emphasises natural variability in the way that different people’s brains work. It is associated with the disability rights and autistic rights movement, which calls for greater understanding of autism (and other neurodevelopment conditions) in terms of differences rather than deficits. Taken at face value, the neurodiversity principle seems to be hard to reconcile with the high levels of need often encountered in clinical and education settings. Can we adopt a neurodiversity framework while also providing evidence-based supports where they are needed? In this talk Sue Fletcher-Watson will describe how a progressive model of autism can be combined with psychological theory and participatory methods to deliver evidence based interventions without compromising respect or scientific integrity.
YANNICK BLEYENHEUFT, BELGIUM
Yannick Bleyenheuft, PT, PhD
Professor at the Institute of Neuroscience, Université catholique de Louvain, Brussels, Belgium
Honorary attached to the Center for Cerebral Palsy Research of the Teachers College, Columbia University, NY, USA
Title: HABIT-ILE, an intensive intervention increasing autonomy and participation in children with cerebral palsy.
Hand and Arm Bimanual Intensive Therapy Including Lower Extremities has gained a growing interest since its development in 2011. This motor-skill learning based intervention uses functional goals defined by the children and their parents to promote autonomy and participation. Its effectiveness has been demonstrated in children with both unilateral and with bilateral CP, and the observed functional improvements have shown a link to neuroplastic changes. This keynote will focus on the key principles of HABIT-ILE, the improvements obtained in different subgroups of children with CP at the level of motor and non-motor functions, and the changes induced in autonomy and social participation
MILLER FREEMAN, USA
Miller Freeman, M.D.
Last Co-director of the Cerebral Palsy Program and the Clinical Director of the Gait Analysis Laboratory at the A.I. duPont Hospital for Children,
Title: Future Options for Managing Complex Multi-system Disabilities